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On a personal note, next week we are taking Lily to Duke Children's hospital for her GI appointment. I am hoping we can get some answers as what is going on with her, will she be medicated for life? Does she need a surgery because her throat is to small (ok this is all in my imagination, I don't know if there is such thing as a to small throat. Let alone a surgery for it)? But I am hoping its not a waste of our 153 miles one way to the appointment and the Dr doesn't rush us out. I just want to know she will grow out of it or what I need to do to make her better. Her occupational therapy seems to be going well. We have moved up to stage 3 baby food and a few bottles (not pleased about bottles, but whatever works) of milk. She is still mostly drinking formula and still needs Zantac 2x a day.
We have been doing therapeutic brushing for 2 weeks now, not really sure if its making a difference. But she likes it and I don't mind doing it. It takes up a lot of our time, we have to do it every 2 hours. We have been using a Nuk brush before meal times, this has been helping her use her muscles on the sides of her mouth as well as oral stimulation. I've also gotten her a few little balls, she loves them and seems to be getting over her issues with touching "weird" feeling things.
Just to leave you with a happy thought
Thanks for reading.